Tuesday, September 30, 2014

6 months check ups

Naomi had three 6 month check ups in September and has had good results at all three.  Her leg fusion has almost completed which is great news. We have discovered Naomi has a bent tibia on her left leg which they can't do anything about - she has had a 1 cm wedge in her shoe to help keep her level  for the last 4 years now. We are so glad she doesn't need more leg surgery. 

The growth specialist is happy with how things are going ; Naomi is now 1m 78.7 cm (5 ft 11"),  we will see them again in 6 months.

Naomi saw her spinal surgeon at the London outpatients . The X-ray looked good;  all the metal work is fusing up as hoped.  There is some rotation below the rods which is giving Naomi some discomfort but he is going to monitor things in 6 months time.   

We enjoyed a look around the state rooms at   Buckingham Palace afterwards and fitted in a bit of new clothes shopping for when the brace comes off .  Naomi will be starting physio and a reduced time in her spinal brace over the next few months . After 10 years of wearing one its going to take some getting used to . 

Tuesday, September 2, 2014

And more pictures !

We all had a great summer !


Ready for year 10

After a full summer of ; school music trip to Disneyland Paris to sing , volunteering at the village library for 3 sessions , SU holiday week  , Church  bible week for 160 local Luton children , as a young helper and 2 week holiday in France , Naomi has coped with it all and not needed too much rest. 

We are so greatful she was well enough to achieve all she set out to do .  We hope this year will give her a chance to catch up at school , after 15 weeks off school last year. Having said that she has 2 hospital  appointments in Oxford next week!