Luke's 13 today!

1 year follow up at RNOH outpatients Bolsover Steet

Naomi had her 1 year check up and X-ray with Mr Lehovsky.  All looking stable and he was happy the metal work has not moved so signs that fusion has occurred. 

So we headed off to BBC for a tour.  Really well led by our guides who coped with 15 (year 8) french students who didn't really know where they were! 

Luke had a great weekend at Fellowship afloat

Discovered a new sowing shop near us Naomi's done 2 workshops so far!

Celebrating with Uncle Russell for his 50 th in Macclesfield

Heart check up

Naomi had her 6 monthly heart scan last week at Oxford John Radcliff . All is well with the aorta staying enlarged but stable at 3 cm and the mitral and tricuspid valve prolapse stable with mild regurgitation.  

Naomi's now 180.7 cm ( 6 foot) and 6 1/2 stone . 

Naomi will have an MRI next year in preparation for moving up to the adult cardiac/ MARFAN clinic ! 

We return again this week to Oxford for the growth clinic . 

( Naomi with friends dog!)

Great excitement in the Smith house

Sold the Wii and bought an Xbox - Luke's very pleased he owns 50% of it! 

End of term

Naomi's on 97% attendance at school this term !!! 

Pictures from Golden wedding family gathering 2014

Special day with Dad Remembering mum on the second anniversary of her death January 8 th