Monday, June 1, 2009
Back to school on the hottest day of the Year !!
Naomi managed to go back to school today full time but " felt very sorry for herself" said her teacher ! "It was so hot Mummy !! ". She had a chance to lie down and have Calpol at school. She is having some pain in her shoulders and hips on and off - a shooting pain that comes and goes but most of the time she is pain free and running around. We had a good half term " holiday at home" and got out for day trips to London - clothes shopping and shoes now size 4 AA width ! Roald Dahl museum and easy walks .
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2 comments:
Hi, Naomi and family. My name is Emily, I'm 23, and I live in Tucson, Arizona. I just finished avidly reading through your entire blog, which I found online doing some research on Marfan syndrome. I was so compelled to read it because I have scoliosis myself - two curves of 30 degrees last time a doctor checked, but I think they've decreased since then, thanks to therapy and yoga. My heart full to bursting with admiration, love, and wishes for the happiest goes out to you, Naomi. You are so brave and beautiful, and a deep inspiration to me.
I cannot believe it is already July! Hope you are not too hot in this unusual british weather and that you will be able to enjoy summer holidays to the full. Good luck with everything!
Lucie
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