We got Naomi home yesterday evening.... her brace arrived mid morning, went back for some adjustments, and then we had to arrange for some standing x-rays before discharge.
She slept well, and doesnt seem to be in too much discomfort this morning.
Thanks to all of you for your messages of support.
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Hi... I give your www adress to my web www.marfanuvsyndrom.com (Czech republic website about Marfan syndrome). Can you add my adress to your links on this blog to support this syndrome in Czech?
Thank you.
Iva Svozilová (22 years old girl, my dad died with marfan in 53 years age)
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