Monday June 16 th

Naomi had her heart ultra sound check this morning at John Radcliffe Oxford; first one since the three big operations these last 7 months and we are very happy to say that her enlarged heart has NOT got any worse. 

Puberty  is a critical time for heart development so she will be checked every 6 month now.

We've  got the date for her sleep / breathing study , we go back to Oxford for that this Wednesday !! (We are happy to get it looked at before Naomi's school music tour  to Paris in July ). Then it's a round trip home via Stanmore Thursday afternoon to measure up for orthotic boots and orthotics insole and raised wedge for Naomi's slim feet and uneven length legs.