Naomi had her last canulas removed today (Monday), she now just has the nasal feeding tube, and oxygen at night. She is going to Plaster Theatre first thing on Tuesday morning to be cast for a new brace to wear until the next operation in 4-6 months. We are expecting this to be hard as she will have to lay on her front for the first time so they can cast her back. The hospital school tracked her down today and arrived with a special easel so she could paint. They also rigged up a laptop, as expected she found her way quickly to the HSM2 website! She was also able to look at the blog for the first time.
9 comments:
Well every one Rachel here it is 3 am and Nomai is doing well having obs done. Most tubes are out and the Ng tube (feeding tube) is off for the day. We get ready for plaster theatre at 6am so I had better get back to bed next to Naomi. THe ward it quieter tonight PTL. This is the first time I have been able to sit and read the blog since Saturday so great to hear from you all it really is a lift at 3 am !!!!!!
as they say in Swahili Bwana Asifiwe Praise the Lord. All nations are represented here and it is a joy to talk to people from all over the world. Night Night
Rachel and Naomi who is now asleep
Rachel - I see your typing has improved since last night!
Hope all goes well today. You must all be very tired.
David
Really pleased to hear you are making such good progress. These teachers are very clever you know they never let you have any time off !!! Keep smiling
Love Paula Jamie Thomas and Ben XXX
hi Dear Naomi, my name is Kim and I work with your daddy. He and Mummy sent me the link to your blog. I'm not so good on a computer and I had a bit of a problem (problem is definitely me as I know everyone else is managing to add to the blog). I have been so pleased to see such excellent progress since you had the operation. I tell everyone at work how you are such a very brave little girl and we have all been praying hard for you (and mummy daddy and Luke of course)!
I am sure you were delighted to get onto a Laptop so quickly and didn't miss HSM2 whilst you didn't have both hands. My daughter is 13 and she just loves that site, the film and books etc. She was very keen to know if you had a particular favourite person or if it was all the people at the high school. I'm glad to see every single day you are making wonderful progress, removing the mask during the day etc is a really big step and something I'd especially prayed for you to be able to do. I look forward to watching your progress every day
God Bless Naomi I hope you are not too busy and are managing to snatch a bit of sleep between HSM2 and painting :-))
Love from Kim
Pleased that you are making such good progress. Love and Prayers from Aunty Mary, Dominic and Beverley
Hello Naomi
It's so lovely to be able to read all about how you are and look at the photo's! I feel so proud to know such a brave girl!All your friends at Crawley Green send their love!
Dear Rachel, Richard and Luke
You are all missed very much at Crawley Green.We think of you and talk of you often, especially at coffee mornings!Love Mandy
Hi to all of the Smiths,
It's great to see how Naomi is getting on. Tom found out lots about Naomi on sunday at Jungle Trek - he couldn't stop talking about how Naomi was having to go to the toilet!! - he was fascinated!
Well done Naomi on being so brave - your spine looks fantastic now!
Love to you all,
Ali, Nigel, Joshua & Tom
x
Hi peeps,We are thrilled to hear that you are shedding your tubes now. We love the picture of you painting Naomi - you are a proper Michaelangelo cos he painted the cistern(!!!???) in that Italian chapel a few years ago lying on his back. Maybe you will become as famous as him,on top of being a star already.
We will be praying for you as you have your brace cast procedure tomorrow. Love and hugs (gentle ones)Susan and David xx
HI Naomi,
you are one very brave girl!!! I see you are being very positive and making the most of what you can do ... well done!
Hi Rachel,
how are YOU? Thinking of you often and praying for you all. Shalom!
Post a Comment